HPV Cancer Resources

Getting a cancer diagnosis is anything but easy. There’s a lot of fear and worry floating about, whether you’re dealing with this alone, or facing this with loved ones. Prognoses are uncertain. People expect that there are physical challenges ahead, with surgery, chemo, or radiation likely in the offing. One thing a lot of people don’t understand, however, is how the diagnosis is just as challenging mentally. Decisions will need to be made, accommodations put in place, financial burdens will need to be overcome. Uncertainty will reign supreme. You will learn the meaning of the term “scanxiety”, which refers to the anxiety cancer patients suffer while awaiting the results of their latest CT/MRI/PET scan. I’ve written about the 12 Lessons Learned from My Cancer Diagnosis, and you may find this information helpful. Or not. Despite the fact that you have gotten the same diagnosis of thousands of other patients, your path forward will be different from theirs. Part of this is because we all bring different life experiences into the doctors office with us. Another part is that the cancer cells themselves will be unique, like snowflakes. They will share many features with other cancer cells, but they will all be different at the level of their genes. Many cancer patients feel the burden of living up to some idealized image, that of the stoic patient who endures their treatments without complaint and somehow emerges from the ordeal changed for the better. That’s a lot to ask of someone. If you take that path, that’s great, but that is not a responsibility that you need to bear.

I reached out to several cancer patients following my diagnosis for reading suggestions, and the best one I got was Viktor E. Frankl’s Man’s Search for Meaning. It’s a memoir written by a Jewish psychiatrist who spent time in four Nazi concentration camps. His parents, brother, and pregnant wife were all killed. Every day he dealt with the greatest indignities imaginable, with a very reasonable possibility that it could easily be his last. What does this have to do with cancer? He ultimately figured out that, like cancer patients, he was unable to make the thing that was making his life terrible go away. This led to an understanding that when people face these challenges, the only thing we can really change is how we respond to them. You can’t cure cancer, but you can try to figure out a way to make the best of the situation. This, too, is not an easy undertaking, but you may find this book helpful.

Please take a look at the other pages in this Patient Information section of the website for info on:
Newly Diagnosed? First Steps
Second Opinions
Mental Health
Head and Neck Cancer Treatments
Scans
Cancer Staging
Clinical Trial Basics
Recurrent and Metastatic Disease
Financial Help
HPV Cancer Support/Advocacy Groups
Resources for Patients and Caregivers
Hot Topics

This last page, Hot Topics, answers common questions and concerns that many patients have about their cancer and their treatment. Here's a list of the current topics:

(1) How Do You Get An Oral HPV Infection?
(2) Is There A Benefit To Getting Vaccinated Against HPV If You Already Have HPV?
(3) What Effect Does Radiation/Chemo Dose De-Escalation Have On Cure Rates?
(4) Proton vs. Photon (X-rays). Which Radiation Method Is "Better"?
(5) The NavDx Test For HPV+ Cancer Cells In Your body. Is It Useful?
(6) Follow Up Screening For Cancer Recurrences
(7) Are There Other Treatments That Are Known To Be Effective In Curing HPV-caused Cancers?
(8) How Exactly Does HPV Cause Cancer?
(9) Is Being p16+ The Same Thing As Having HPV-16?
(10) How Are Cancer Survival Rates Calculated, And How Long Is It Until One Is Considered "Cured"?
(11) Can The HPV Virus That's Infected One Area Of Your Body Migrate To Another?
(12) How Often Do People Get Cancer Recurrences, And How Are They Most Often Found?
(13) Why Do You Need To Be Your Own Best Advocate For Your Cancer Healthcare?
(14) What Do You Say To People Who Push Alternative Cancer Treatments?

One of my hobbies is writing song lyrics for classic jazz instrumentals. Below is Overcoming Problems, my adaptation of Duke Jordan’s No Problem. It’s an unsparing look at the many challenges cancer patients face, both physically and mentally, but with an uplifting message. Feel free to share the link to the YouTube page if you enjoy the song.

And this original composition was co-written with my friend Willie Laufer (another oral cancer survivor): Searching for NED (No Evidence of Disease). Though the path ahead may be rocky, you have to have hope! I hope that each of you finds NED at the end of your treatments.